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PODS Newsletter
November 2002

Happy Fall Y’all!

Hope the school year is going well for you. Do you have any ideas for the upcoming HOLIDAY PARTY? Would you like to volunteer to help with the organization of this event? We need organizers and helpers! Please call Jamie Jean 410-349-0195 or email at jeanfive@netzero.net for more information! OUR GROUP NEEDS VOLUNTEERS!

The DC Buddy Walk has been postponed until the Spring 2003 and NDSS will let us know more when they get a date firmed up. Hopefully, this time we can have the walk. For those of you who have not participated in a Buddy Walk before, it is a great experience and you get to meet families from all over the DC metro area. If you would like to volunteer please contact the DC coordinator, Doreen Hodges at ddtr1@bellatlantic.net

Here is a description list of the volunteer positions:

5th Annual National Buddy Walk
Washington, DC
Sunday, October 20, 2002

MEMO
VOLUNTEER OPPORTUNTIES

GOODIE BAG DISPERSERS – Disperse the goodie bags to all participants upon their arrival of completing the walk. Total needed 15

REGISTEREES – To sit at the NDSS table to register those walkers that did not register via mail or e-mail. Total needed 10

REGISTEREES ASST. – To assist the Registerees by handing out the official Buddy Walk T-Shirts to those that have and will register for the walk. Total needed 15.

MEETERS and GREETERS – To assist participants with directions and parking to the Sylvan Theatre. You will be placed at the nearest Metro Stops and some street locations for those driving. Total needed 15.

SET UP and CLEAN UP – Assist with setting up the tables, chairs, snack area and other areas for the event. Total needed 35 people.

SPEAKERS – Siblings, teenagers and adults- needed to talk about being a Buddy to someone diagnose with Down Syndrome. Total needed 10 people.

Working on the Buddy Walk is a great experience! So volunteer!

Special Oympics is starting up some new sports like floor hockey and basketball. Please contact Gregg Meade at 410-923-0383 or use the link on our website for Special Oympics.


HAP : The handicapped athletic association of Anne Arundel County was established in 1966 to provide programs for citizens with disabilities. HAP offers softball, ten pin bowling, duck pin bowling and social events. Cindy Herring, President 410-551-5068 (call between 6-9PM)


Does your school have a Special Education Parent Liaison? The Special Education Parent Liaison is a parent of a child with disabilities. The liaison is a volunteer who helps other parents through the special education process. The liaison is available to answer questions, provide information and resources, or just talk about special education issues at home or at school. For more information, talk to your principal. The Special Education Parent Liaison Program is sponsored by the Partners for Success Resource Center, serving families and educators of students with disabilities in Anne Arundel County. You can reach the center at 410-222-3805.


Do you have the Special Education Rights…and Wrongs handbook from the Maryland Disability Law Center, Inc? This handbook is designed to give you many of the tools you will need to protect your child’s rights. Call: The Maryland Disability Law Center for your free copy at (800) 233-7201.


Solving the Relationship Puzzle

Opening Doors to Friendship to People in the Autistic Spectrum

Dr. Steven E. Gutstein

Coming to Northern Virginia

March 21 & 22, 2003 (Friday & Saturday)

Register at: www.autismoutreach.org

Description:

Until recently, parents and professionals had no alternative to the general expectation that a person with autism would live a life of loneliness, apart from others. Following years of clinical practice, teaching and research, Dr. Gutstein was unwilling to accept such bleak predictions. Through tireless effort and a desire to open the world of joy and excitement found through authentic relationships, his work culminated in the Relationship Development Intervention Program, RDI. Described in his book, "Autism, Aspergers: Solving the Relationship Puzzle", the treatment protocol developed by Dr. Gutstein addresses social emotional deficits in an easily understood, systematic manner. His creative methods have provided a path for emotional fulfillment for the thousands of children, adolescents and adults who might otherwise face an isolated future.

Course Objectives

By the end of the workshop, you will walk away with:

  • Practical strategies and activities to use immediately
  • How social and emotional objectives tackle deficits
  • Face-to-face sharing of excitement
  • Using partner's nonverbal expressions
  • Synchronizing simple actions for mutual enjoyment
  • Referencing and responding to a friend's interest level
  • Enjoying variation and adapting easily to transitions
  • The six levels of relationship development
  • Instrumental vs. Experience Sharing
  • Basic elements of the Relationship Development Assessment (RDA)
  • How RDI works in a home based program
  • How RDI social objectives easily translate into IEP goals
  • Tips for facilitating small play groups
Outline of Topics

  • What it's like to be an adult in the autism spectrum.
  • Why do people even in the high functioning autism spectrum lead unsatisfying lives.
  • Critical deficits that appear early in life: cognitive, emotional and social skills.
  • Two Ways of Thinking: Absolute and relative information processing.
  • Two Types of Social Development: Experience sharing interactions and instrumental interactions.
Video Presentation

  • Goals of RDI (Relationship Development Intervention)
  • The RDI Model of Relationship Development
  • Slides and Video Presentation
  • Principles of the RDI
  • Building a relationship development intervention program.
  • Slides and video presentation of various ages and stages of development.

March 21, 2003
8:00-9:00 am Registration
9:00-10:30 am Topics Discussed
10:30-10:45 am Break
10:45-12:00 Noon Topics Discussed
12:00-1:00 pm Lunch Break (included)
1:00-3:00 pm Topics Discussed
3:00-3:15 pm Break
3:15-4:00 pm Topics Discussed

March 22, 2003
9:00 am (Same as above, but no registration)

Location:

Dulles Hyatt
2300 Dulles Corner Blvd.
Herndon, Virginia 20171
USA

Dr. Steven E. Gutstein

Dr. Gutstein received his Ph.D. in Clinical Psychology in 1980 from Case Western Reserve University. From 1980 to 1987 he was on the faculty of Baylor College of Medicine and the University of Texas Medical School, where he conducted research, developed innovative programs and published extensively on ways families can help their children cope with medical and developmental crises. As well as conducting his clinical practice, Dr. Gutstein is currently the co- director, along with his wife Rachelle Sheely, of The Connections Center for Family and Personal Development. He is on the clinical staff of Texas Children's Hospital. Drs. Gutstein and Sheely have been married for over 20 years and have two daughters, Hannah and Esther. Dr. Gutstein is the author of "Autism, Asperger's: Solving the Relationship Puzzle" as well as coauthor with Dr. Sheely on the recently published volumes, "Relationship Development Intervention with Young Children" and "Relationship Development Intervention with Children, Adolescents and Adults".

FYI - From this week's issue of IDEA Practices:

Celebrate the 2nd Annual National Inclusive Schools Week in your school!

The 2nd Annual National Inclusive Schools Week will be celebrated December 2-6, 2002, in classrooms, schools, and communities throughout the country to highlight the nation's progress in providing a quality education to an increasingly diverse student population.National Inclusive Schools Week, which involved tens of thousands of participants in more than 2,000 schools and school districts in nearly all 50 states in 2001, is sponsored by the National Institute for Urban School Improvement, a project of the U.S. Department of Education's Office of Special Education Programs. The National Institute chacterizes inclusive schools as those that:* Make sure each and every student feels welcome and is learning.* Embrace the understanding that every student is unique and, therefore learns differently.* Understand that all children--students with and without disabilities,English language learners, those with special talents learn better if teaching is tailored to their abilities and interests.* Collaborate with families.* Hold high expectations for student success and focus on continued improvement."The overwhelming participation and success of the first annual National Inclusive Schools Week has led us to sponsor another week of events," said the National Institute's Co-Director David Riley. "Once again we will be offering educators, students, and families an opportunity to celebrate how far we've come in meeting the needs of all learners and to discuss what else needs to be done to ensure that all schools successfully educate all children," Riley said.To help schools plan events for National Inclusive Schools Week, the National Institute is offering an updated "Celebration Kit" containing:* Publications that outline the benefits of inclusive schools.* Suggested readings for children and adults. * Celebration ideas and lesson plans, and materials to use in promoting the week.* Ideas for older students, including essay contests and ways to involve civics and journalism classes, student government clubs and organizations.

To learn more about the 2nd Annual National Inclusive Schools Week contact Bonnie Johnson Barry at bjohnsonbarry@edc.org or visit their Web site. Links from this Article:* National Inclusive Schools Week http://www.edc.org

NDSS Parent Information and Advocacy Tips

This is the first in a series of information bulletins from the NDSS policy team to complement its legislative bulletins.

How was school today?

The beginning of a new school year is a good time to share information about parent-teacher communication. It is essential that the communication flow both ways. Parents want to know what is happening at school and they also want to provide information that is critical to their child's progress. Some communication strategies can be established during the IEP planning time. However, the teacher who will implement the IEP for the following school year is often not involved in its development. Therefore, even if a communication plan is outlined in the IEP it may not be appropriate for this teacher.

To work well, the communication plan must meet the needs of the parent, the student and the teacher. That is why there is no "formula" for successful parent-teacher communication. If you make it clear that you are respectful of the teacher's time constraints and paperwork demands, most teachers will respect your need for communication. The key is to be flexible and creative. It is important to emphasize that you want to support your child's teacher by following through at home, but you need information in order to do this. You also want to support the teacher by sharing strategies that have been successful, in addition to any other information that would help your child's performance at school.

One of the challenges of parent-teacher communication is to make sure both parties are clear on the need for high, but reasonable, expectations for the student. It is harmful if the teacher's expectations are too low and it is equally harmful if the teacher is frustrated because he or she thinks the student should be at a higher level or achieving at a faster pace than is reasonable for this child. It is important to check the work that is coming home to see if the expectations have been set at an appropriate level. If the bar has been set too low or too high you can either adapt the homework to model the work you believe your child should be doing or find some other way to communicate the need for different expectations.

The following are tips to assist you in setting up a communication plan. Some of these tips also apply to communication between private service providers (e.g. speech, OT and PT providers) and their counterparts at school:

  1. Check with your state Parent Training and Information Center to see if they have information on developing communication plans.
  2. Have a meeting with the teacher(s) before school starts to discuss your child and your expectations as well as the teacher's expectations. If possible, have the teacher participate in drafting the IEP that he or she will be implementing.
  3. Keep a continuous dialogue with your child's teacher. Communication is not just for problems. You want to hear about the positive things your child has done and the teacher will appreciate your praise and gratitude when appropriate.
  4. You can model the attitude you want the teacher to have toward your child. If you show the teacher that you celebrate all your child's achievements, (whether they are big or small, academic or social) the teacher can learn to celebrate with you and see your child through your eyes. If a teacher is only looking at the things your child can't do, you can turn his or her attention to the things your child can do. It is important to share your long-term goals for your child so the teacher understands the big picture.
  5. Learn the paper exchange. Does your child bring work home? Does it need to be returned? How much homework? When are tests?
  6. Establish a system in which you can receive information and give feedback on the work. Sometimes a simple numerical "code" is helpful to indicate the degree of assistance the student needed to complete a classroom assignment or homework (e.g., #1 for independence, #2 for visual cues, #3 for verbal cues and #4 for one-on-one assistance).
  7. Many parents establish an exchange of information regarding behavior. It can be very helpful if behavior problems are approached with similar reinforcements both at home and at school.
  8. Communicate with your child's teacher about concerns, issues and medications that might affect your child at school. Help the teacher understand the implications of your child's disability.
  9. Request an IEP review if a problem arises that may require a change in your child's accommodations, services, goals and/or objectives.
  10. Be respectful of the teacher's time. If you have a number of issues to discuss, you should arrange a brief phone conference or meeting rather than stop the teacher in the hallway.
  11. Set up a folder/notebook to keep track of school information: phone numbers, school policies, school calendar, etc.,
  12. Participate in school activities, especially the PTA.
  13. Volunteer your time and skills to help in the classroom and on field trips. If your job or younger children make this difficult, there are often tasks that a teacher can send home for you to do (e.g., tally book club orders or field trip permission forms).

If you have questions or comments about this information sheet, contact Patty Smith at psmith@ndss.org If you others you know would like to be added to the NDSS mailing list, send name(s) and email address to alauritzen@ndss.org.


Through Education, Research and Advocacy, The National Down Syndrome Society works to ensure that all people with Down Syndrome have the opportunity to achieve their full potential
National Down Syndrome Society, 666 Broadway, New York, NY 10012, Phone: 800-221-4602; Fax: 212-979-2873; e-mail: info@ndss.org Web site: http://www.ndss.org
That is about all I have for now to let you know about…just a reminder though if you are looking for information about workshops please contact Partners for Success at 410-222-3805 or check out the links on our website for Parents Place of Maryland.

If you would like to contribute to the newsletter or have ideas for the group please contact me at 410-340-0195 or email jeanfive@netzero.net

Happy Fall!
Jamie Jean
President of Anne Arundel County PODS

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PODS Newsletter
January 2002

Happy New Year! May you all have a very happy, healthy 2002!

We have gotten some nice comments on the website. Thanks. Please remember that we would like some stories and/or advice for the website. We would also like some pictures to put on the website.

Check out the links also to see what workshops and other events might be coming up in the community. Special Olympics is starting back up when the children go back to school on January 7, 2002. Parents' Place of Maryland has a schedule of workshops being offered on their website. There is so much that we can't list it all so check out the links!

This month we are printing a copy of a song (A LINE ACROSS HIS HAND) that was written by a special education teacher who has taught many children with Down syndrome. She does not have a child with Down syndrome. She is hoping to have the words put to music and released. So enjoy it. She wanted to share it.

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PODS Newsletter
February 2002

We want to thank you all for your comments and suggestions for the website. We have heard from several new families recently and they are finding this website to be a valuable resource. When a new family contacts us we also mail out a parent package. So, please refer any new families you meet around the county. We are here to support each other. We want to help families have as much information as possible for whatever situation they might be facing such as medical concerns or school situations. There is so much information available on Down syndrome. Knowledge is power!

Speaking of information, the 2002 Down Syndrome Conference sponsored by Kennedy Krieger is being held on Saturday, March 23, 2002. You need to register early since space is limited. This is a very good conference and very informative. The speakers this year include Professor Sue Buckley, Dr. Libby Kumin and Dr. George Capone. The conference is all day and is $50 per person or $95 per couple. The fee includes lunch and refreshments. For more information, you can look on the Kennedy Krieger website or call 410-502-9691. All registrations must be received by March 15, 2002. There will be no on site registration. The Kennedy Krieger Institute's Down Syndrome Clinic was established in 1989 and is the result of a cooperative effort between Down Syndrome parent support groups and the professional staff at the Kennedy Krieger Institute. It is currently the only Down Syndrome Clinic in the State of Maryland and serves children, adolescents and adults. This one-day conference has been designed especially for parents, educators and other professionals who care for children with Down syndrome and their families.

It is also the time of year to be thinking about extended school year services for school age children. If you feel your child will lose skills or has emerging skills then you need to request an IEP meeting to discuss extended school year (ESY) services. If you need more information about ESY and what to do to get this service then you can contact Partners for Success at 410-222-3805 or the Parents' Place of Maryland at 410-859-5300. These offices can also help you with other special education issues.

A good resource for you to have also is the Special Education Rights…And Wrongs. This is a free publication that is put together by The Maryland Disability Law Center (MDLC). MDLC is a private, non-profit law firm. To request your free copy, please call 410-727-6352 or 1-800-233-7201. This handbook is designed to give you many of the tools you will need to protect your child's rights.

Dr. Libby Kumin has undertaken a study of the factors that help make children's speech more understandable or make it difficult to understand. She needs information from families. To participate, you need to complete a short survey. It is hoped that the results will help us to develop effective treatment programs. The results of the study will be shared with families and speech language pathologists. The few minutes that you take to complete this form will be a tremendous help in our efforts to better understand and treat speech problems for children with Down syndrome. The survey is available on-line at the Loyola College web site. Click on Speech Intelligibility Survey. The questionnaire can also be mailed to you. Send your address to lkumin@loyola.edu or Dr. Libby Kumin, Loyola College Columbia Graduate Center 7135 Minstrel Way Columbia, MD 21045. To learn the most, we need responses from many families. Feel free to give copies to your friends, hand out at meetings, and reprint in newsletters. Thanks for your help. Working together, we can make a difference!

Have a great February. Please remember that we are looking for contributions from you for this newsletter and website. Your comments and suggestions are appreciated.

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PODS Newsletter
March 2002

Can you believe it is already March! Spring will be here before we know it! March is a busy month if you are ready to attend some seminars or workshops. A great time for you to get some information!

The 2002 Down Syndrome Conference is on Saturday, March 23, 2002 at the Maritime Institute of Technology Training and Conference Center, 5700 Hammonds Ferry Road, Linthicum Heights, MD 21010. (The Conference Center is five minutes from BWI Airport). This one-day conference has been designed especially for parents, educators and other professionals who care for children with Down syndrome and their families. Sponsored by Kennedy Krieger Institute Down Syndrome Clinic, celebrating 13 years of service to The Down Syndrome Community, in cooperation with the Chesapeake Down Syndrome Parent Group, Inc. and the Down Syndrome Resource Network of Howard County. Registration for the conference is $50 per person, $95 per couple and includes lunch and refreshments. Early registration is encouraged as space is limited. Registration forms will be processed in the order received. All registrations must be received by March 15, 2002. There will be no onsite registration. For more information please call 410-502-9691 or email: martinh@kennedykrieger.org

The 3rd Annual Camp & Vacation Fair at the Arc of Anne Arundel County, Inc. will be held on Tuesday, March 12, 2002 from 4pm to 8pm at the Arc of Anne Arundel County, 931 Spa Road, Annapolis, MD. You will receive information and meet with representatives from day camps, overnight camps, parks and recreation and travel agencies. For more information please contact Kathleen Flahive or Tameka Smith at 410-269-1883. This is a free event.

Special Olympics Maryland, Anne Arundel County is starting spring sports. Please call Gregg Meade at 410-923-0383 or email to wgmeade@worldnet.att.net or check the website at www.soaamd.org

Special Boy Scout Troop 216 meets the first and third Wednesday nights from 7:00 to 8:30 pm at the Knights of Columbus Hall on Ritchie Highway. Troop 216 is a special Boy Scout Troop for mentally or physically challenged boys and men from age 11 to any age. For more information, please call Paul Higgins at 410-761-3397 or Jim Dunne at 410-859-0544.

Welcome to Middle School – A workshop designed to assist parents in understanding special education services and issues at the middle school level. Topics will include communicating with staff, ensuring I.E.P. implementation and how to resolve conflicts. This workshop will be on March 13 from 6:30 to 8:30 pm at the Partners for Success Resource Center, Millersville Elementary, 1601 Millersville Rd, Millersville, MD and on March 20 from 6:30 to 8:30 at Central Middle School, Resource Classroom, 221 Central Ave, East, Edgewater, MD. To reserve a seat, call 410-222-3805.

Please remember the 2002 Arc Golf Challenge at South River Golf Links on May16, 2002. PODS will receive a portion of the proceeds. Please contact Angie DeMoreland at 410-269-1883 for more information about the event or being a volunteer.

We would like to have your comments, suggestions and contributions to this website and newsletter. Please email Jamie Jean at jeanfive@netzero.net or call 410-349-0195. We would like to include photos of the children in our group. So dig them out and send them in!

Have a great month!!!!!

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PODS Newsletter
April 2002



Hope you all are enjoying the great weather! Schedules are getting so busy with sports and school activities! So please forgive me for this late newsletter.

Are you interested in attending the Chesapeake Bay Blues Festival? Well, Special Olympics is a partner this year and is looking for volunteers to help out. The event is on May 18-19 2002 at Sandy Point State Park. If you volunteer you will receive a free t-shirt, parking pass and meal. Please contact Katy Schieman at 410-695-2760 or Kks412@yahoo.com if you would like to volunteer. The shifts are from 9:00 – 3:15 or 2:45 – 9:00 each day.

Thanks for your help!!!!!!


Book Reviews:

What’s Wrong with Timmy? Maria Shriver Warner Books, $14.95

“What’s wrong with Timmy?” little Kate asks about a child with Down syndrome. And that’s the beginning of a book full of rapid-fire questions about children with disabilities…each one answered thoughtfully and honestly by the mom in the story, who, we find out, dealt with the very same issue herself as a child.

Written with sensitivity and insight by journalist Maria Shriver, “What’s Wrong with Timmy?” will help parents teach their children valuable lessons about understanding and accepting differences among people.

Reprinted from NDSS newsletter, spring 2002


Know Your Buddy Book Marty Postlethwait and Kathleen Patton

Shadow Buddy dolls have been around for more than a decade, helping children with difficult medical conditions cope by being a “friend just like me.”

With the help of the Know Your Buddy Book, Shadow Buddies can promote compassion and understanding in children by helping them learn about a medical condition or disability of a friend or classmate. Designed for children in kindergarten through sixth grade, it introduces 17 conditions that can be paired with a Shadow Buddy; Down syndrome is among them. Each chapter includes a child’s personal story, facts about the condition and activity pages for students.

This comprehensive resource would be a wonderful addition to a grade school curriculum. The book and its buddies can be ordered on line at www.shadowbuddies.com.

Reprinted from NDSS newsletter, spring 2002


A Special Kind of Hero Jo Beth McDaniel, Chris Burke Authors Guild Backinprint.com, $16.95

Chris Burke became one of America’s favorite personalities when he starred as “Corky” on the nit ABC television series Life Goes On. Not since Helen Keller has one person so thoroughly changed the way the world views people with disabilities. Twenty-five years earlier, when Chris was born with Down syndrome, doctors advised his parents to put him in an institution. Instead, the showered him with love and encouraged him to reach for his dreams.

This is Chris’ story, and the story of his family’s love and determination. Here he tells what it’s really like to grow up with Down syndrome. Journalist JoBeth McDaniel first wrote about Chris in a Life magazine cover story. Profoundly inspirational, A Special Kind of Hero is a triumphant story of courage and hop that proves Chris’ motto: “Obstacles are what you see when you takes your eyes off your goal.”

Reprinted from NDSS newsletter, spring 2002


New Playgroup Forming in Annapolis

Florence August is interested in beginning a play group in the Annapolis area. Anyone who is interested should call her at 410-757-8339.


Applications Being Accepted for “Partners in Policymaking”

“Partners in Policymaking” is sponsored by The Arc of Maryland, The Maryland Developmental Disabilities Council and The Maryland Infants & Toddlers Program/Family Support Network.

Interested in becoming a leader in your community? Partners in Policymaking is for you. Partners is an innovative training program designed to provide information, training, resources and skills building to self advocates and parents of young children with disabilities so that they may obtain the best available services for themselves and others.
The overall goal of Partners is to develop productive partnerships between people who need and use services and those in a position to make policy and law. This is accomplished by providing participants with opportunities to meet and talk to national leaders in the field of developmental disabilities. The program will educate participants about current issues and state-of-the-art approaches, as well as policymaking and legislative processes at local, state and national levels. Maryland Partners in Policymaking is a series of intensive leadership seminars created to assist individuals with developmental disabilities and parent of children with developmental disabilities in learning about state-of-the-art resources in special education, best practices in fostering the independence of children and adults with development disabilities, community inclusion, state and federal legislation, and community organizing. More than this, Partners in Policymaking will help you get involved and become a leader in the disability advocacy movement, joining others who are working to improve the lives of people with disabilities. The seminars are offered free of charge.

For more information on this program, visit The Arc’s website, www.thearcmd.org/Programs/Partners/information.htm or contact the Partners Coordinator at: 410-974-6139 Annapolis line.

Application deadline is May 1, 2002. If accepted, a notification will be received by July 1, 2002.


Playgroup will meet on Friday, May 17, 2002 at Florence August’s home from 9:30 am to 11:00 am. Florence’s phone number is 410-757-8339 and her address is 811 Mallard Circle in Arnold. Directions from Ritchie Hwy: Take a left onto College Parkway, left onto Shore Acres, left onto Bayberry, left onto Lynch, right on White Flan, and right on Mallard Circle. Her house is the third one on the right. Everyone is welcome. Please call Florence is you have any questions. Hope to see you there!!!!


Anne Arundel County Special Education Citizens’ Advisory Committee Thursday, May 9th, 2002 at 7:00 pm to 9:00 pm Location: Board of Education Building, Riva Road, Annapolis, MD The Anne Arundel County Special Education Citizens’ Advisory Committee is an advocacy and advisory committee made up of parents, community leaders, educators and school administrators that advocate for and support positive changes for special education services available to students in Anne Arundel County Public Schools. All those interested are invited to attend. For more information, please contact Frank Wise, 410-721-4562, FLWise@aol.com or Kelli Nelson, AA-SECAC@yahoogroups.com


The Parents’ Place of Maryland
Understanding Psychological and Educational Test Information. Dr. Larry Larson, presenter on Thursday, May 16th, 2002
Location: Olney Library, Montgomery County, MD
Co-sponsored by Olney Exceptional Kids. Contact Kim Khan to pre-register at 301-924-4824 or email c-Kimberly.Khan@wcom.com Pre-registration is mandatory for all workshops. The workshops are presented free of charge to parents of children with disabilities. However, a donation of $5-$15 for each person attending each workshop (depending on the workshop) to help defray the cost of duplicating the materials given to participants, would be appreciated – BUT- no one will be excluded. Fees for professionals are based on the workshop presented. For more information about The Parents’ Place of Maryland – phone 410-859-5300/Fax 410-859-5301.
www.ppmd.org

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PODS Newsletter
September 2002


Hope you all had a great summer! The PODS picnic was great. Thanks to all who attended! If you have pictures from the picnic please email them to me at jeanfive@netzero.net

So, now it is time to back to school and you know what that means…you might need a workshop or some help with school issues.

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A Two-Part Workshop on Special Education Laws and Regulations Presenter: Larry Larsen, Ph.D. Department of Special Education, Johns Hopkins University

When: Saturday, September 7 from 9:00 am to 1:00 pm and Saturday, September 14, from 9:00 am to 1:00 pm

Where: Legacy Learning, Inc. 10378 Baltimore National Pike Ellicott City, MD 21042

Registration Fee: There is not a fee for this workshop, but registration is necessary. For more information please call: 410-480-2203

For information on other workshops being offered through The Parents’ Place of Maryland, please check out their website under Links.

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The Baltimore-Chesapeake Chapter of the Autism Society of America (ASA) in partnership with The Anne Arundel, Frederick, Howard, and Montgomery County ASA Chapters, with support from Family NET Works - A project of the Maryland Developmental Disabilities Council, the Maryland Developmental Disabilities Administration, the Maryland State Department of Education, and the Maryland Coalition for Inclusive Education present

Embracing Autism/Broadening Opportunities: Individuals with Autism in Home, School, and Community

A Full-day Conference Featuring Presentations on:

Including Children with Autism: New Hampshire's SCANS Project Michael McSheehan, Education and Technology Consultant, RI Supports for Families Whose Children (of Any Age) Live at Home Ruth Sullivan, Executive Director, Autism Services Center, WV Community-Based Services in Maryland Nancy Kirchner, Assistant Director, Developmental Disabilities Administration; Anne Marie Lane, Transition Specialist, Maryland State Department of Education; Joy Savage, Opening Doors Project, The Arc of Anne Arundel County Update on the Autism Medicaid Waiver Marjorie Shulbank, Maryland State Department of Education

Followed by a Tech Playroom by Monica Phelps of the Center for Technology in Education and a special Networking Reception hosted by the Baltimore-Chesapeake Chapter of the ASA.

Saturday, October 5, 2002 Registration and Continental Breakfast: 8-9 am Conference: 9 am to 5 pm (includes lunch) Turf Valley Resort and Conference Center Ellicott City, MD

Embracing Autism/Broadening Opportunities Registration Deadline: October 1, 2002

Name: ____________________________________________________

Address: _________________________________________________

Phone: _______________________ E-mail: ___________________

Number of parents/family members attending ________ x $35.00

Number of professionals attending ________ x $50.00

TOTAL ENCLOSED: __________________

Dietary Restrictions: _____________________________________

Make checks payable to: BCC-ASA, PO Box 10822, Baltimore, MD 21234 (410) 655-7933

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Special Olympics has started back up for the Fall season. Soccer is every Monday night at 6:00 pm at Marley Middle School. Please check out the link for Anne Arundel County Special Olympics on our website for more information.

News from PODS members……

I was talking to the owner of East Coast Martial Arts yesterday, as 2 of my 3 kids take karate there. The subject of classes for special needs kids came up. I was wondering if you could send out the following message to the PODS email list to see what the interest would be.

The owner of East Coast Martial Arts has expressed willingness to hold a daytime class for kids with special needs, especially Down syndrome. The class could be adjusted to the level of the kids who attend, but we are hoping to make this class focus on basic skills like balance, sequencing and listening. He would be willing to have some of his black belt students assist as aides as needed. He also said that he would be willing to give a free trial class sometime this fall to "kick the tires" on the idea. This message is mostly to get an idea if there is interest in such a program. If anybody is interested, please send me an email with the name and age of your child.

Ginger Houston-Ludlam < href=mailto:ginger@fron-tech.com>ginger@fron-tech.com

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Hello everyone.

I found a cool site that talks about people first language.

A person is not handicapped.
A person is not disabled.
A person has a disability.

It's a great commentary by Kathie Snow. Hope you enjoy it disabilityisnatural.com

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Hi all,

I was perusing the website for the Baltimore Aquarium and found this info about special needs. Of most interest is probably the deaf awareness dates - there are two left in 2002 and this information includes a $3 off coupon. I did call about the AccessAquarium dates for 2003 but apparently that program is now on hold for renovations. Hope this is helpful to someone! Mary Klopcic

Assistive Listening Devices - Receivers are available from the Information Desk in the Marine Mammal Pavilion for those whose hearing aides are not equipped with a t-switch; if you do have t-switch capabilities, an induction loop is available in specially marked seating for the dolphin show.

AccessAquarium - Two evenings per year, the AccessAquarium program makes the National Aquarium in Baltimore available to individuals who are physically or mentally challenged. The evenings are free and by reservation only for organizations that serve these populations. The 2002 AccessAquarium date is May 23, 2002.

ASL Interpreters Sign language interpreters are available for public presentations 4 weekend days per year. Check Information Desks for the exact dates, contact the Visitor Services Department at (410) 659-4278 or call our TTY line at (410) 625-0720. The Deaf Awareness Day dates for 2002 are March 19, June 9, September 14 and December 1. With advanced notice, interpreters are available upon request. Call (410) 576-3845.

Audio Tours - A taped audio tour can be obtained in the Main Aquarium at the Coat/Stroller Check.

Braille Tour - A Braille tour of the main aquarium is available at the information desk in the Main Aquarium Lobby.

Captioning - This feature is available on all interactive videos.

Deaf Awareness Day

Saturday, September 14, 2002 from 10 a.m. to 5:30 p.m.

Certified Sign Language Interpreters will be at the following public presentations:

Ray Feedings: 10:30 a.m. and 2:30 p.m. (lobby level)

Dolphin Shows: 11:00 a.m., 12:30 p.m., 2:00 p.m., 3:30 p.m., 5:00 p.m. (Marine Mammal Pavilion)

Puffin Feedings: 11 a.m. and 3:00 p.m. (4th floor)

General Visitor Programs* (Lyn P. Meyerhoff Auditorium, in main lobby): 11:40 a.m., 1:10 a.m., 2:40 p.m., and 4:10 p.m.

*times subject to change

Deaf Awareness Days for 2002: March 9 - beginning of Deaf History Month June 9 September 14 - Deaf Awareness Week December 1 - Clerc-Gallaudet week

For more information, contact the Aquarium at 410-659-4278 (voice); the Special Customer Liaison at 410-576-3845 (v) or leave a message on the TTY at 410-625-0720 and your call will be returned by TTY.

$3 off General Admission National Aquarium in Baltimore DEAF AWARENESS DAYS

Valid only on
Saturday, March 9, 2002
Sunday, June 9, 2002
Saturday, September 14, 2002
Sunday, December 1, 2002

This coupon is good for $3 off general admission to the National Aquarium in Baltimore. One discount coupon per person. Not to be combined with any other offer. This coupon may be duplicated for distribution. May not be sold or redeemed through TICKETMASTER. The National Aquarium in Baltimore is not affiliated with the National Aquarium located in Washington DC.

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Elevators - Elevators displaying the wheelchair accessibility symbol have been designated for use by visitors who use wheelchairs while touring both Aquarium buildings.

Emergency Assistance - Aquarium staff are trained to assist you in the event of a fire evacuation or other emergency.

Express Entry - Visitors with special needs and their parties may purchase tickets at the Accessible Entrance and gain immediate entry to the Aquarium, thereby avoiding the chance of a wait if tickets are purchased at the main ticket booth.

Parking - There is no on-site parking. Visitors may be dropped off at our circular bus drop-off spot in front of the Aquarium. Vehicles displaying the Handicapped Parking tag may park at street meters for double the length of the meter at no cost. Check our 'About Us' section for public parking information.

Reserved Seating - Reserved areas for the dolphin presentation provide you and your guests with a magnificent view of these marine mammals.

Service Animals - Service animals are allowed in all public areas of the Aquarium.

Scripts - Scripts for all public presentations including seal and puffin feedings, general visitor auditorium programs, the dolphin show and the "Windows on the Wild" exhibit in the Exploration Station are available at the information desks in the Main Aquarium Lobby and on Level 4; and at the Information Desk on Level 1 of the Marine Mammal Pavilion.

TTY Phones - A public TTY phone is located off of the Lobby of the Main Aquarium. All public phones are equipped with amplification mechanisms.

"Touch Bag" of tactile items - The "Touch Bag" is available in the Main Aquarium at the Coat/Stroller Check.

Special Visit Times - Avoid the crowd by visiting on the first Saturday and first Sunday of the month. Our First Saturdays and First Sundays program for visitors with special needs allows you and your guests to enter 30 minutes before the Aquarium opens to the general public.

Tour Guides and Readers - Available on a limited basis through prior arrangement.

Individuals and Families - contact the Special Customer Liaison at (410)576-3845 at least 14 days prior to your visit Groups - Groups contact Centralized Reservations at (410) 576-3833. All reservations need to be made at least one month in advance TTY Phone Line - Visitors may contact the Aquarium on the TTY line at (410) 625-0720.

Wheelchairs/Strollers Route - A companion Accessibility Guide and Map is available for those who follow the specially-designed wheelchair/stroller route. This can be obtained at the Accessibility entrance by the Outdoor Seal Pool, as well as at all Information Desks.

Wheelchairs/Strollers Use in the Building - Wheelchairs can be obtained free of charge, with the deposit of a driver's license, at the ground level Accessible entrance to the Main Aquarium. They are available in limited numbers, on a first-come, first-serve basis for use inside the Aquarium. Strollers for children with disabilities are the only strollers allowed in the buildings. An Aquarium tag, picked up from the Coat/Stroller Check, must be displayed while touring.

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We have some new members who are interested in us starting meetings up again. I would like some idea from you all if you are interested in that and what ideas you might have for meetings. So call me (410-349-0195) or email me jeanfive@netzero.net and let me know.

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